WAGR syndrome is an extremely rare genetic condition that can affect both boys and girls. It is the direct result of (typically) non-inherited deletions of genetic material around chromosome 11p13. There are less than a few hundred cases of WAGR syndrome reported in worldwide medical literature.
Babies born with WAGR syndrome often have eye problems, are at high risk for developing certain types of cancer, and are at a high risk for various developmental delays. The term “WAGR” stands for the first letters of the most common features associated with the condition:
What is “The Summit” and when was it? The WAGR Research Symposium (“The Summit”, for short) is going to be a gathering of 25-30 experts in the field of Wilms' tumor in children with WAGR syndrome (FROM AROUND THE WORLD!!!) It was held May 1st and 2nd, 2...Read More
On Thursday, September 12th, WAGR Warriors will hold their 5th annual golf outing at Greystone Golf Club and Banquet Center. We are so thankful for our generous sponsors and everyone that is able to join us to show their support! All proceeds from th...Read More
Thank you U.S. Representative Candice Miller for your support in cosponsoring a House resolution designating February 28th as National Rare Disease Day!! "Through initiatives like the WAGR Warrior Foundation, these advocated are helping to increase the leve...Read More