WAGR
Warriors
Dedicated to improving the lives of those affected by WAGR syndrome
Thank you for your continued support.
Your generosity empowers us to create a powerful impact for those affected by WAGR Syndrome and other rare diseases.
We look forward to making an even bigger impact in 2021.
What is WAGR Syndrome?
WAGR syndrome is an extremely rare genetic condition caused by random deletions of genetic material around chromosome 11p13.
People with WAGR syndrome often have eye problems, are at high risk for developing certain types of cancer, and are at a high risk for various developmental delays.
What’s with the zebra?
Doctors are taught to assume that the simplest explanation is usually correct, summed up from a quote by Dr. Theodore Woodward: “When you hear hoof beats behind you, don’t expect to see a zebra.”
Sometimes, however, physicians are confronted with rare diseases: The Zebras.
A rare disease is generally considered to affect fewer than 200,000 people in the United States at any given time.
There are more than 6,800 rare diseases. Altogether, rare diseases affect an estimated 25 million to 30 million Americans.
The zebra is the official U.S. symbol of rare diseases — its distinctive markings symbolizing both individual uniqueness and community support.
Donate Now
You can help us fulfill our mission to improve the lives of those affected by WAGR syndrome and other rare diseases.