What is WAGR Syndrome
WAGR syndrome is an extremely rare genetic syndrome caused by random deletions of genetic material around chromosome 11p13. Children with WAGR Syndrome are predisposed to develop Wilms tumors, Aniridia, Genitourinary problems, and a Range of developmental delays.
(W)ilms Tumor: The most common form of kidney cancer in children
(A)niridia: Some, or complete absence, of the colored part of the eye
(G)enitourinary Problems: Such as genital or urinary problems, testicles that are not descended, or hypospadias (abnormal location of the opening for urination)
(R)ange of Developmental Delays
How you can help
The funds raised by the WAGR Warriors organization go to:
Supporting and promoting awareness and knowledge of WAGR Syndrome and other rare diseases
Supporting and promoting medical research
Supporting other organizations concerning the cause, prevention and therapeutic treatment of WAGR syndrome and other rare diseases
Providing aid and relief to persons suffering from WAGR syndrome and other rare diseases (including family members and caretakers of such persons)
Members of WAGR Warriors are all unpaid volunteers; thus every dollar raised will go directly towards our mission of improving the lives of those affected by WAGR syndrome and other rare diseases.
Because WAGR Syndrome is so rare, every dollar contributed has a direct impact on the lives of these families. WAGR Warriors is a non-profit, 501(c)3 organization established in the State of Michigan. All donations are tax deductible.